Metachromatic Leukodystrophy Community
United Research & Engagement Survey (MLDCures)

Welcome to the MLDCures Patient Registry for families impacted by Metachromatic Leukodystrophy.

We are here to serve the MLD community.
Join our free and accessible registry now!

For Patients

Get Involved

Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.

For Researchers

Drive Research

This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?