Metachromatic Leukodystrophy Community
United Research & Engagement Survey (MLDCures)
Welcome to the MLDCures Patient Registry for families impacted by Metachromatic Leukodystrophy.
This registry is currently paused. No data is being accepted at this time. Please check back later for updates.
For Patients
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.
For Researchers
Drive Research
This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?