Sponsor
Cure MLD and The Calliope Joy Foundation
Bala Cynwyd, PA, 19004
https://www.curemld.com/
https://www.thecalliopejoyfoundation.org/
Registry Contact
Marly McGowan
info@curemld.com
(610)-664-1588
IRB
North Star Review Board
https://learningirb.org/
info@northstarreviewboard.org
1-877-673-8439
Institutional Review Board (IRB)
An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board.
Social Media
Facebook
Cure MLD
The Calliope Joy Foundation
Instagram
Cure MLD
The Calliope Joy Foundation
LinkedIn
Cure MLD
The Calliope Joy Foundation
YouTube
Cure MLD
Visit the National Organization for Rare Disorders home page at rarediseases.org.